Compassion, health and community in the public sphere

Authors

DOI:

https://doi.org/10.22409/antropolitica2024.v56.i3.a62305

Keywords:

Compassion, Health, Community, Suffering.

Abstract

This paper discusses the discourse of compassion in contemporary health literature, with an emphasis on texts on the place of compassion in health practices and texts on the public health approach called “compassionate communities”. The goal is to identify and characterize a politics of compassivity and suffering in these discourses. The texts are selected from searches in the Latin American and Caribbean Health Sciences Literature and PubMed databases and interpreted according to the questions proposed by the paper, that is, the relationship between compassion, health and the public sphere. In the first set of texts, I highlight ways of categorizing and measuring compassion in health care, and a particular form of compassionate therapeutics. In confluence with recent medicalization and professionalization trends, it is argued that compassion can be a new way of defining problems as pertaining to the domain of “health” and, therefore, of carving a space for healthcare expertise in the public sphere. Attempts are made to make compassion a measurable and intelligible index from a scientific point of view, especially according to the methodological standards of the health sciences. Thus, “therapeutics of compassion” is drawn up in which compassion seems to be the missing ingredient and the possible solution to a series of social problems other than illness. In the second set of texts, the articulation between compassion and community stands out, through which a policy of compassion centered on loss and death as universal experiences can be propagated. Here, the therapy of compassion is generalized and articulated with a constellation of ideas relating to the “community” as a level of healthcare intervention and socio-political organization. Finally, the ambiguities and issues of a possible politics of compassion and community are discussed.

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Author Biography

Lucas Faial Soneghet, Programa de Pós-Graduação em Sociologia e Antropologia, Universidade Federal do Rio de Janeiro

Pós-doutorando no Programa de Pós-Graduação em Sociologia e Antropologia da Universidade Federal do Rio de Janeiro. Doutor em Sociologia pela Universidade Federal do Rio de Janeiro.

References

ABEL, Julian; KELLEHEAR, Allan; KARAPLIAGOU, Aliki. Palliative care – the new essentials. Annals of Palliative Medicine, [s. l.], v. 7, n. suppl 2, p. S3-S14, 2018. Disponível em: https://apm.amegroups.org/article/view/19026/19347. Acesso em: 14 fev. 2024.

ARENDT, Hannah. On revolution. Londres: Penguin Books, 1990.

BERLANT, Lauren. Introduction: compassion (and withholding). In: BERLANT, Lauren (ed.). Compassion: the culture and politics of an emotion. Nova York: Routledge, 2004. p. 1-13.

BIBLIOTECA VIRTUAL EM SAÚDE. Localizar descritos de assunto: empatia. Portal Regional da BVS, [s. l.], [s.d.]. Disponível em: https://pesquisa.bvsalud.org/portal/decs-locator/?lang=pt&mode=&tree_id=F01.752.355. Acesso em: 14 fev. 2024.

BIEHL, João. Antropologia no campo da saúde global. Horizontes Antropológicos, Porto Alegre, v. 17, n. 35, p. 227-256, 2011. Disponível em: https://www.scielo.br/j/ha/a/twDHCzCdqq6dXRhV5BLxkSy/?lang=pt. Acesso em: 14 fev. 2024.

BOLTANSKI, Luc. Distant suffering: morality, media and politics. Cambridge: Cambridge University Press, 1999.

BONET, Octavio. Sentindo o saber. Educação da atenção e medicina de família. Horizontes Antropológicos, Porto Alegre, v. 21, n. 44, p. 253-277, 2015. Disponível em: https://www.scielo.br/j/ha/a/N97pbDnGJNRMb8YLr4W7nHx/?lang=pt. Acesso em: 14 fev. 2024.

BORGSTROM, Erica; WALTER, Tony. Choice and compassion at the end of life: A critical analysis of recent English policy discourse. Social Science & Medicine, v. 136-137, p. 99-105, 2015. Disponível em: https://www.sciencedirect.com/science/article/abs/pii/S0277953615002865?via%3Dihub. Acesso em: 14 fev. 2024.

BORNSTEIN, Erica. Disquieting gifts: humanitarianism in new delhi. Stanford: Stanford University Press, 2012.

CAMARGO JUNIOR, Kenneth Rochel de. A biomedicina. Physis: Revista de Saúde Coletiva, Rio de Janeiro, v. 15, p. 177-201, 2005.

CHOULIARAKI, Lilie. Cosmopolitanism as irony: a critique of post-humanitarianism. In: BRAIDOTTI, Rosi; HANAFIN, Patrick; BLAAGAARD, Bolette (ed.). After cosmopolitanism. Nova York: Routledge, 2013. p. 77-96.

COTTA FILHO, Cezar Kayzuka; MIRANDA, Fernanda Berchelli Girão; OKU, Hiromi; MACHADO, Giovanna Cristina Conti; PEREIRA JUNIOR, Gerson Alves; MAZZO, Alessandra. Cultura, ensino e aprendizagem da empatia na educação médica: scoping review. Interface: Comunicação, Saúde, Educação, [s. l.], v. 24, e180567, 2020. Disponível em: https://www.scielo.br/j/icse/a/BVCVCQmsbC7ZZfT3kJR5Xjj/?lang=pt. Acesso em: 14 fev. 2024.

CRAWFORD, Paul; BROWN, Brian; KVANGARSNES, Marit; GILBERT, Paul. The design of compassionate care. Journal of Clinical Nursing, [s. l.], v. 23, n. 23-24, p. 3589-3599, 2014. Disponível em: https://onlinelibrary.wiley.com/doi/10.1111/jocn.12632. Acesso em: 14 fev. 2024.

D’AMICO, Lynne. Empathy and compassion in the health-related literature: disciplinary and topic trends and gaps. Journal of Compassionate Health Care, [s. l.], v. 5, n. 6, p. 1-10, 2018. Disponível em: https://jcompassionatehc.biomedcentral.com/articles/10.1186/s40639-018-0049-3. Acesso em: 14 fev. 2024.

DAS, Veena. Affliction: health, disease, poverty. Nova York: Fordham University Press, 2015.

DE SWAAN, Abram. In care of the state. Nova York: Oxford University Press, 1988.

DELANTY, Gerard. Community. Nova York: Routledge, 2010.

DUMONT, Katia; MARCOUX, Isabelle; WARREN, Émilie; ALEM, Farah; ALVAR, Bea; BALLU, Gwenvael; BOSTOCK, Anitra; COHEN, Robin; DANEAULT, Serge; DUBÉ, Véronique; HOULE, Janie; MINYAOUI, Asma; ROULY, Ghislaine; WEIL, Dale; KELLEHEAR, Allan; BOIVIN, Antoine. How compassionate communities are implemented and evaluated in practice: a scoping review. BMC Palliative Care, v. 21, n. 1, p. 131-144, 2022. Disponível em: https://link.springer.com/article/10.1186/s12904-022-01021-3. Acesso em: 14 fev. 2024.

FASSIN, Didier. Compassion and repression: The moral economy of immigration policies in France. Cultural Anthropology, [s. l.], v. 20, n. 3, p. 362-387, 2005.

FASSIN, Didier. Humanitarian reason: a moral history of the present. Oakland: University of California Press, 2011.

FAVELA COMPASSIVA. Favela compassiva: Rocinha e Vidigal. Favela Compassiva, Rio de Janeiro, [s. d.]. Página inicial. Disponível em: https://www.favelacompassiva.org.br. Acesso em: 14 fev. 2024.

FOUCAULT, Michel. Microfísica do poder. 28. ed. Organização, introdução e revisão técnica: Roberto Machado. São Paulo: Paz & Terra, 2014.

GARBER, Marjorie. Compassion. In: BERLANT, Lauren (ed.). Compassion: the culture and politics of an emotion. Nova York: Routledge, 2004. p. 15-27.

GARZIN, Ana Claudia Alcântara; FERRARI, Carla Maria Maluf; PEREIRA, Giovana Caldas; DUARTE, Kawany de Oliveira Rodrigues; RODRIGUES, Samara Gomes; KOWALSKI, Ivonete Sanches Giacometti. Burnout, satisfação e fadiga por compaixão: relação com a qualidade assistencial e segurança do paciente. O Mundo da Saúde, [s. l.], v. 48, e1580, 2024. Disponível em: https://revistamundodasaude.emnuvens.com.br/mundodasaude/article/view/1580/1416. Acesso em: 14 fev. 2024.

GIDDENS, Anthony. Modernidade e identidade. Tradução: Plínio Dentzien. Rio de Janeiro: Jorge Zahar, 2002.

GILBERT, Paul. Introduction and outline. In: GILBERT, Paul (ed.). Compassion: conceptualisations, research and use in psychotherapy. Londres: Routledge, 2005. p. 1-6.

JEFFREY, David. Empathy, sympathy and compassion in healthcare: is there a problem? Is there a difference? Does it matter? Journal of the Royal Society of Medicine, [s. l.], v. 109, n. 12, p. 446-452, 2016. Disponível em: https://journals.sagepub.com/doi/10.1177/0141076816680120. Acesso em: 14 fev. 2024.

KALLMAN, Meghan Elizabeth; CLARK, Terry Nichols. The third sector: community organizations, ngos, and nonprofits. Chicago: University of Illinois Press, 2016.

KARIYAWASAM, Lasara; ONONAIYE, Margarita; IRONS, Chris; KIRBY, Sarah Compassion-based interventions in Asian communities: a meta-analysis of randomized controlled trials. Psychology and Psychotherapy: Theory, Research and Practice, [s. l.], v. 96, n. 1, p. 148-171, 2022. Disponível em: https://bpspsychub.onlinelibrary.wiley.com/doi/10.1111/papt.12431. Acesso em: 14 fev. 2024.

KELLEHEAR, Allan. Third‐wave public health? Compassion, community, and end‐of‐life care. International Journal of Applied Psychoanalytic Studies, [s. l.], v. 1, n. 4, p. 313-323, 2004.

KELLEHEAR, Allan. Compassionate cities: public health and end-of-life care. Nova York: Routledge, 2005.

KELLEHEAR, Allan. Compassionate communities: end-of-life care as everyone’s responsibility. QJM, [s. l.], v. 106, n. 12, p. 1071-1075, 2013. Disponível em: https://academic.oup.com/qjmed/article/106/12/1071/1633982. Acesso em: 14 fev. 2024.

KEMP, Jessica; ZHANG, Timothy; INGLIS, Fiona; WILJER, David; SOCKALINGAM, Sanjeev; CRAWFORD, Allison et al. Delivery of compassionate mental health care in a digital technology-driven age: scoping review. Journal of Medical Internet Research, [s. l.], v. 22, n. 3, e16263, 2020. Disponível em: https://www.jmir.org/2020/3/e16263. Acesso em: 14 fev. 2024.

KIRBY, James; DAY, Jamin; SAGAR, Vinita. The ‘Flow’ of compassion: a meta-analysis of the fears of compassion scales and psychological functioning. Clinical Psychology Review, [s. l.], v. 70, p. 26-39, 2019. Disponível em: https://www.sciencedirect.com/science/article/abs/pii/S0272735818303787?via%3Dihub. Acesso em: 14 fev. 2024.

KOLCHRAIBER, Flávia Cristiane; TANAKA, Luiza Hiromi; NEGI, Lobsang Tenzin; ATANES, Ana Cristina; SOUZA, Káren Mendes Jorge de. Efeitos do treinamento cognitivo de compaixão na quebrada: estudo misto. Revista Latino-Americana de Enfermagem, [s. l.], v. 30, e3575, 2022. Disponível em: https://www.scielo.br/j/rlae/a/tL5v6mFZ57qzTZhN79gHVGj/?lang=pt. Acesso em: 14 fev. 2024.

KUAH-PEARCE, Khun Eng; GUIHEUX, Gilles. Nurturing compassion through care-giving and care-receiving: the changing moral economy of AIDs in China. Anthropology & Medicine, [s. l.], v. 21, n. 1, p. 71-86, 2014. Disponível em: https://www.tandfonline.com/doi/abs/10.1080/13648470.2014.881461. Acesso em: 14 fev. 2024.

LATIN AMERICAN AND CARIBBEAN HEALTH SCIENCES LITERATURE. Latin american and Caribbean health sciences literature. LILACS, [s. l.], [s. d.]. Disponível em: https://lilacs.bvsalud.org/en/#about. Acesso em: 14 fev. 2024.

LOCK, Margaret; NGUYEN, Vinh-Kim. An anthropology of biomedicine. Hoboken: Wiley-Blackwell, 2010.

LUTZ, Catherine; ABU-LUGHOD, Lila. Language and the politics of emotion. Cambridge: Cambridge University Press, 1990.

LUTZ, Catherine; WHITE, Geoffrey.The anthropology of emotions. Annual Review of Anthropology, [s. l.], v. 15, p. 405-436, 1986.

MENEZES, Rachel Aisengart. Em busca da boa morte: Antropologia dos cuidados paliativos. Rio de Janeiro: Garamond; Fiocruz, 2004.

NATIONAL LIBRARY OF MEDICINE. National center for biotechnology information. National Library of Medicine, [s. l.], 2023. About. Disponível em: https://pubmed.ncbi.nlm.nih.gov/about/. Acesso em: 14 fev. 2024.

NGUYEN, Vinh-Kim. The republic of therapy: Triage and sovereignty in West Africa’s time of AIDS. Durham: Duke University Press, 2010.

NUSSBAUM, Martha. Compassion: The basic social emotion. Social Philosophy and Policy, [s. l.], v. 13, n. 1, p. 27-58, 1996.

PAIVA, Carlos Henrique Assunção; PIRES-ALVES, Fernando. Atenção primária à saúde: uma história brasileira. Rio de Janeiro: Hucitec, 2021.

PAPADOPOULOS, Irena; SHEA, Sue; TAYLOR, Georgina; PEZZELLA, Alfonso; FOLEY, Laura. Developing tools to promote culturally competent compassion, courage, and intercultural communication in healthcare. Journal of Compassionate Health Care, [s. l.], v. 3, n. 2, p. 1-10, 2016. Disponível em: https://jcompassionatehc.biomedcentral.com/articles/10.1186/s40639-016-0019-6. Acesso em: 14 fev. 2024.

PESTIAN, Teresa; AWTREY, Eli; KANOV, Jason; WINICK, Naomi; THIENPRAYOON, Rachel. The impact of organizational compassion in health care clinicians: a scoping review. Worldviews on Evidence-Based Nursing, [s. l.], v. 20, n. 4, p. 290-305, 2023. Disponível em: https://sigmapubs.onlinelibrary.wiley.com/doi/10.1111/wvn.12664. Acesso em: 14 fev. 2024.

PFEIFFER, Sandiléia; LISBOA, Carolina Saraiva de Macedo. Dificuldades no engajamento às medidas contra a COVID-19: papel dos medos da compaixão. Psico, Porto Alegre, v. 52, n. 3, p. 1-15, 2021. Disponível em: https://pucrs.emnuvens.com.br/revistapsico/article/view/41601. Acesso em: 14 fev. 2024..

REDFIELD, Peter. Life in crisis: The ethical journey of doctors without borders. Oakland: University of California Press, 2013.

RODRIGUES, Mariana de Sousa Dantes; LUCENA, Pablo Leonid Carneiro; LORDÃO, Alana Vieira; COSTA, Brunna Helen Saraiva; BATISTA, Jaqueline Brito Vidal; COSTA, Solange Fátima Geraldo da. Fadiga por compaixão em profissionais de enfermagem no contexto dos cuidados paliativos: revisão de escopo. Revista Mineira de Enfermagem, Belo Horizonte, v. 25, n. 1, e-1386, 2021. Disponível em: https://periodicos.ufmg.br/index.php/reme/article/view/44505. Acesso em: 14 fev. 2024.

ROSE, Nikolas. Community, Citizenship and the Third Way. American Behavioral Scientist, [s. l.], v. 43, n. 9, p. 1395-1411, 2000.

ROSE, Nikolas. Disorders without borders? The expanding scope of psychiatric practice. BioSocieties, [s. l.], v. 1, n. 4, p. 465-484, 2006.

SINCLAIR, Shane; KONDEJEWSKI, Jane; JAGGI, Priya; DENNETT, Liz; ROZE DES ORDONS, Amanda L.; HACK, Thomas F. What is the state of compassion education? A systematic review of compassion training in health care. Academic Medicine, [s. l.], v. 96, n. 7, p. 1057-1070, 2021. Disponível em: https://journals.lww.com/academicmedicine/fulltext/2021/07000/what_is_the_state_of_compassion_education__a.55.aspx. Acesso em: 14 fev. 2024.

SMITH, Kirsten; BISHOP, Felicity; DAMBHA-MILLER, Hajira; RATNAPALAN, Mohana; LYNESS, Emily; VENNIK, Jane et al. Improving empathy in healthcare consultations – a secondary analysis of interventions. Journal of General Internal Medicine, Londres, v. 35, n. 10, p. 3007-3014, 2020. Disponível em: https://link.springer.com/article/10.1007/s11606-020-05994-w . Acesso em: 14 fev. 2024.

SONEGHET, Lucas Faial. Fazendo o melhor da vida na morte: qualidade de vida, processo de morrer e cuidados paliativos. Revista M. Estudos sobre a morte, os mortos e o morrer, v. 5, n. 10, p. 357-382, 2020. Disponível em: https://seer.unirio.br/revistam/article/view/9615. Acesso em: 14 fev. 2024.

SONEGHET, Lucas Faial. A normalidade crítica do cotidiano diante do adoecimento e da morte. Anuário Antropológico, v. 47, n. 2, p. 205-222, 2022. Disponível em: https://journals.openedition.org/aa/9720. Acesso em: 14 fev. 2024.

SONTAG, Susan. Regarding the pain of others. Nova York: Picador, 2004.

SPELMAN, Elizabeth. Fruits of sorrow: framing our attention to suffering. Boston: Beacon Press, 2001.

THATCHER, Margaret. Interview for Womans Own (“no such thing [as society]”). [Entrevista cedida a] Douglas Keay. Margaret Thatcher Foundation, 2024. Disponível em: https://www.margaretthatcher.org/document/106689. Acesso em: 14 fev. 2024.

TICKTIN, Miriam. Casualties of care: Immigration and the politics of humanitarianism in France. Oakland: University of California Press, 2011.

TRONTO, Joan. Moral boundaries: A political argument for an ethic of care. Nova York: Routledge, 1993.

VAN DYK, Silke. Post-wage politics and the rise of community capitalism. Work, Employment and Society, [s. l.], v. 32, n. 3, p. 528-545, 2018. Disponível em: https://journals.sagepub.com/doi/10.1177/0950017018755663. Acesso em: 14 fev. 2024.

VIETEN Cassandra; RUBANOVICH, Caryn Kseniya; KHATIB, Lora; SPRENGEL, Meredith; TANEGA, Chloé; POLIZZI, Craig et al. Measures of empathy and compassion: A scoping review. PLoS ONE, [s. l.], v. 19, n. 1, e0297099, 2024. Disponível em: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0297099. Acesso em: 14 fev. 2024.

WILKINSON, Ian. The new social politics of pity. In: URE, Michael; FROST, Mervyn (ed.). The politics of compassion. Londres: Routledge, 2014. p. 121-135.

WILLIAMS, Simon; CALNAN, Michael. The ‘limits’ of medicalization?: modern medicine and the lay populace in ‘late’ modernity. Social Science & Medicine, [s. l.], v. 42, n. 12, p. 1609-1620, 1996.

Published

2024-12-02

How to Cite

Soneghet, L. F. (2024). Compassion, health and community in the public sphere. Antropolítica - Revista Contemporânea De Antropologia, 56(3). https://doi.org/10.22409/antropolitica2024.v56.i3.a62305

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