The influence of the “Quality of Life for All” extension project on the quality of life of an adult with cerebral palsy
a case study
Keywords:
People with disabilities, University extension, Aquatic activities, Quality of lifeAbstract
Cerebral palsy, also known as chronic non-progressive encephalopathy, is characterized by changes in motor control due to neurological injuries. The practice of aquatic activities has been considered as a possible intervention for this population with the aim of promoting improvements in quality of life; however, evidence on this topic is scarce. Therefore, the objective of this study was to verify whether participation (for two months) in the extension project of aquatic activities called “Quality of Life for All Project” interferes in the quality of life of an adult with cerebral palsy. A volunteer who was already being treated in the project participated in the research. He answered the Short Form Health Survey 36 Version 2 questionnaire, which assessed general aspects of quality of life, at two moments: before and after a two-month period of participation in the project. In addition, he answered a general question to assess what his quality of life was like before and after participating in the project. The domains functional capacity, limitation due to physical aspects and mental health had a decrease in value, while the pain domain did not change. In the domains of general health status, vitality, social aspects and limitations due to emotional aspects, the results were positive. The question about quality of life before and after participation in the project obtained a positive result. Currently, there is no specific questionnaire to assess the quality of life of adults with cerebral palsy. It is concluded that more research is needed on the quality of life of this public, based on the characteristics of this population. In addition, it is noted that quality of life is formed by several domains influenced by numerous factors in the individual's life. Given this fact, improvements, worsening and no changes were observed in the domains investigated.
References
ALMEIDA, Marco Antonio Bettine de; GUTIERREZ, Gustavo Luis; MARQUES, Renato Francisco Rodrigues. Qualidade de vida: definição, conceitos e interfaces com outras áreas de pesquisa. São Paulo: EACH/USP, 2012.
ALMEIDA, Túlio Fernandes de et al. Trajetória do projeto de extensão qualidade de vida para todos 2014-2018: uma análise documental. CONGRESSO BRASILEIRO DE CIÊNCIAS DO ESPORTE, 21., 2019, Natal. Anais [...] Campinas: Galoá, 2019. Disponível em: https://proceedings.science/conbrace-2019/trabalhos/trajetoria-do-projeto-de-extensao-qualidade-de-vida-para-todos-2014-2018-uma-ana?lang=pt-br. Acesso em: 13 dez. 2024.
ALVES-NOGUEIRA, Ana Cláudia et al. A systematic review on quality of life assessment in adults with cerebral palsy: Challenging issues and a call for research. Research in Developmental Disabilities, [S. l.] v. 36, jan. 2020. DOI: https://doi.org/10.1016/j.ridd.2019.103514. Acesso em: 13 dez. 2024.
BAX, Martin et al. Proposed definition and classification of cerebral palsy, April 2005. Developmental Medicine & Child Neurology, [S. l.], v. 47, n. 8, p. 571-576, fev. 2005. DOI: https://doi.org/10.1017/s001216220500112x. Acesso em: 13 dez. 2024.
BONIFÁCIO, Letícia de Oliveira et al. Exercícios aeróbicos aquáticos em indivíduos com Paralisia Cerebral: Revisão Sistemática. Revista Neurociências, [S. l.], v. 29, p. 1-15, 2021. DOI: https://doi.org/10.34024/rnc.2021.v29.12500. Acesso em: 13 dez. 2024.
CICONELLI, Rozana Mesquita et al. Tradução para a língua portuguesa e validação do questionário genérico de avaliação de qualidade de vida SF-36 (Brasil SF-36). Revista Brasileira de Reumatologia, São Paulo, v. 39, n. 3, p. 143-50, 1999.
GORP, Marloes Van et al. Long‐term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Developmental medicine and child neurology, [S. l.], v. 61, n. 2, p. 194-203, jan. 2019. DOI: https://doi.org/10.1111/dmcn.14004. Acesso em: 13 dez. 2024.
LAGUARDIA, Josué et al. Dados normativos brasileiros do questionário Short Form-36 versão 2. Revista Brasileira de Epidemiologia, [S. l.], v. 16, n. 4, p. 889-897, dez. 2013. DOI: https://doi.org/10.1590/S1415-790X2013000400009. Acesso em: 13 dez. 2024.
LEUCAS, Cláudia Barsand de et al. Relato de experiência extensionista: gestão do Projeto Qualidade de Vida para Todos. Revista Interdisciplinar de Extensão, Belo Horizonte, v. 2, n. 3, jun. 2018. Disponível em: https://periodicos.pucminas.br/index.php/conecte-se/article/view/17852. Acesso em: 13 dez. 2024.
LEUCAS, Cláudia Barsand de, SILVA, Larissa de Oliveira e Silva, ALMEIDA, Túlio Fernandes de. Extensão Universitária: Formação Transdisciplinar na Graduação. Qualidade e Políticas Públicas na Educação. Ponta Grossa: Atena, v. 5, p. 107-111, 2018. Disponível em: https://atenaeditora.com.br/catalogo/post/extensao-universitaria-formacao-transdisciplinar-na-graduacao .Acesso em: 19 dez. 2024.
MENDES, Ana Paula Oliveira; BINHA, Anny Michelly Paquier; SILVEIRA, Valéria Cassefo. Qualidade de vida em pacientes adultos com paralisia cerebral. Acta Fisiátrica, São Paulo, v. 25, n. 2, p. 49–53, 2018. DOI: https://doi.org/10.11606/issn.2317-0190.v25i2a162559. Acesso em: 13 dez. 2024.
REBEL, Marcos Ferreira et al. Prognóstico motor e perspectivas atuais na paralisia cerebral. Revista Brasileira de Crescimento e Desenvolvimento Humano, [S. l.], v. 20, n. 2, p. 342-350, 2010. Disponível em: https://pepsic.bvsalud.org/scielo.php?script=sci_arttext&pid=S0104-12822010000200016. Acesso em: 13 dez. 2024.
RODRIGUES, Marília Naves; LIMA, Solange Rodovalho. Atividades motoras aquáticas na coordenação corporal de adolescentes com deficiência intelectual. Revista Brasileira de Ciências do Esporte, Florianópolis, v. 36, n. 2, p. 369–381, abr.-jun. 2014. DOI: https://doi.org/10.1590/S0101-32892014000200007. Acesso em: 13 dez. 2024.
SCHMITZ, Flayani da Silva; STIGGER, Felipe. Atividades aquáticas em pacientes com paralisia cerebral: um olhar na perspectiva da fisioterapia. Revista de Atenção à Saúde, [S. l.], v.12, n. 42, p.78-89, out/dez. 2014. DOI: https://doi.org/10.13037/rbcs.vol12n42.2428. Acesso em: 13 dez. 2024.
SILVA, Rafael Santos Ferreira da; ALMEIDA, Tania de Moura. O impacto da terapia esportiva na paralisia cerebral. Journal of the Health Sciences Institute, [S. l.], v.37, n.2, p. 156-159, jan/mar. 2019. Disponível em: https://repositorio.unip.br/journal-of-the-health-sciences-institute-revista-do-instituto-de-ciencias-da-saude/o-impacto-da-terapia-esportiva-na-paralisia-cerebral/. Acesso em: 13 dez. 2024.
ZANINI, Graziela; CEMIN, Natália Fernanda; PERALLES, Simone Nique. Paralisia Cerebral: causas e prevalências. Revista Fisioterapia em Movimento, Curitiba, v. 22, n. 3, p. 375-381, jul/set. 2009. Disponível em: https://periodicos.pucpr.br/fisio/article/view/19461. Acesso em: 13 dez. 2024.
